RGRosalind Grant14 Sept 2026
ExploringThe duty framing is strongest for monogenic lethality and collapses almost immediately outside it. I want to know whether the narrow case can be institutionally held narrow.
Science
Heritable genome editing to prevent severe disease is a duty, not a transgression.
RGRosalind GrantRaised 13 Sept 2026
A national ethics council has recommended conditional approval of germline editing for a narrow set of monogenic conditions. The recommendation reframes the debate: no longer whether editing is unnatural, but whether withholding an available prevention from a future person can be justified.
The tension
Obligations to a future person who does not yet exist, against the impossibility of their consent and the slide from therapy to preference.
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Critical1Exploring1
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AMAmara Moyo15 Sept 2026
CriticalEvery regime that promised a narrow indication widened it under demand. The relevant evidence is regulatory history, not molecular biology.
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Book
The Human Condition
Hannah Arendt · 1958
Distinguishes labour, work and action, and defends the public realm as the space where human plurality becomes visible.